It's Been a Minute

 There are a lot of things on my mind and I always want to take the time to write and update and share my thoughts but then I get lazy and decide to watch TV; however, today, I am watching TV AND typing (look, my multitasking has gotten better).

I am going to do my best and post some content more often-my life is very exciting so I know all of ya'll want to know what is going on 😊


I realized that I never posted an update with Mateo's Doc Band Journey; this post can be a follow up.  Honestly, Mateo did really well.  He wore it every day, even to sleep, and took it off for only an hour a day.  It was really cute and did the job it was supposed to do.  I was able to decorate it with stickers so that made it a little more playful.  His head shape did not change MUCH but it was enough to notice a difference for us and for him.  Luckily, he only needed one band, some babies need 2 or 3.  

I think a lot of people hear negative things about the helmet but there really is not anything bad I can say about it.  It felt nice to educate my immediate circle about why he needed and and how beneficial it was.  Obviously, they do not think much of us aside from "why does he need it? Is something wrong with him?"  Working in special education has given me some sort of "cushion," I will call it.  I have learned that I have a way of taking something difficult and making it sound not so bad. I give parents hope that their child CAN do something or their small victory is a huge victory.  I always thought that I was really blunt and you could read my face (which is all true), but I also have a really good way of speaking to parents about their kids and their disabilities.  This has helped me explain things to my own family (even though Mateo has yet to show if he has a disability or not), it gave me that "cushion" to talk about and educate.

Thanks for checking in! I will try and post some more info soon.  It took me a day or so to write and the baby is asleep right now so this is kind of prime time.

Comments

Post a Comment

Popular posts from this blog

Different Types of Parents

Image
You may or may not know that I had another son. I have also been in therapy and I had to stop since it got a little expensive (isnt that funny that mental health isnt taken seriously? Thats a post for another day).  During this therapy I learned a lot even though it was a short amount of time. Grieving my fathe rs, mom was emotionally...unstable and had her own things to learn and work through, my family has some foggy boundaries and we do not (always) respect them, just to name a few.  I was angry at my mom for a little bit of this time but I have done some healing and got through that pain and how her trauma has affected her.   Anyways, back to the birth of my second child.  My mom was there; not in the room since it was a c-section, but she was waiting in the lobby.  My oldest sister joined her and she reassured my mom to go.  She left after my fiancee facetimed her so she could see me. It isn’t that my mom didn’t care to see the baby I just had; it’s that she cared more that I was
Read more

Cellular Myofibroma

Image
  My baby had a tumor.  He had surgery to get it removed and he is okay.  It was non-cancerous. I just thought I should get all of that info out of the way because some people might just want that. Now, here is the story: Around late December 2023, Abuela noticed that Martin Julian had a bump on his chest above his right nipple.  I sent the doctor a picture late that night and said it was not something I noticed before.  We got an appointment 2-3 days later.  He then referred us to get an ultrasound and this took about two weeks to schedule.  At the appointment with our pediatrician the next day, he said that radiology said it looked like a nerve sheath tumor (which is not good).  I remember hearing him say this but it did not register until I was leaving the hospital. Even when Dr. Reed said “treat him like the normal and healthy baby he is,” it did not hit me that he was anything different.  I googled what a nerve sheath tumor is and I was reading thinks like “malignant” and “neurofi
Read more

Sigh of Relief

Image
  I quit my job this week.  It was no longer bringing me happiness and sense of fulfillment that I first had.  My district expects a lot, which I can 100% keep up with, but when my work is being questioned with absolutely no reason and everything I do is being nitpicked then I cannot stay around and just take it. I was displaced this year-both of my classrooms closed down so I was having to go back into a SDC Pre-K classroom.  Instead of giving me, a teacher who has been there 7 years, priority over placement, the district hired new teachers and with 2 and 1/2 weeks before work started, I still do not know where I am going.  I reached out to the head of special education, directors, union reps and the president, and the department of early childhood with no response.  I was disrespected after everything I did for the district and my students.  I was made to feel unimportant. and my work was not valued; I was not valued.   The school district is a business-this is what someone just tol
Read more